Let's stop all the medical gaslighting NOW
The entire allopathic medical profession and everyone else registered by law as a health professional, has completely failed us. It's time we took control back and created something new.
I am unvaxxed
The information provided on this article does not, and is not intended to, constitute medical advice; instead, all information, content, and materials available on this site are for general informational purposes only.
Medical gaslighting
What do I mean by medical gaslighting? It is when medical practitioners give you instructions to follow that cannot possibly work, and then blame you in some way when they do not work, implying that you have not followed their instructions and are lying when you tell them you have slavishly obeyed their every command.
Allopathic health care professionals gaslight us all the time. They try to tell us we are not experiencing what we know we are experiencing and proceed to ignore everything we tell them. They run diagnostic tests to find asymptomatic diseases we had no idea we have, and that have nothing whatever to do with the symptoms that took us to them in the first place. They then prescribe treatments for the asymptomatic diseases they have found, and when those treatments fail to bring about health improvements, or even degrade our health further, and our original symptoms worsen, they then accuse us of lying to them and blame us for not following their treatments as ordered.
At no point in this process do they come back to the original issue you took to them. They are not interested. And they are not interested because they have no idea what is wrong with you and what might put it right, and rather than admit to that, they will try to tell you that you are in some way wrong, or bad or non-compliant - that your symptoms are in some way, all your own fault.
Naturopaths and other nominally “holistic” practitioners gaslight us all the time too. They tell us to go away and make better lifestyle choices, and we will get better. Like doctors, when their advice on how to live and how to eat and what supplements to take and what exercise regimes to do fail, they also accuse us of failing to follow their instructions. If we were good enough and obedient enough, we would be better. It’s our fault that we are still sick. We must deserve it in some way.
They are all “repeaters”
For every single legally sanctioned health practitioner of every type out there, their diagnoses and their treatments are based on someone else’s belief patterns. They are “repeaters”.
A Repeater: 1) Someone who never has ideas or opinions of their own. Instead uses those of other people. In fear of their ideas or opinions being stupid. Also because if their "opinions" and "ideas" are attacked its not really their opinion or idea so they have more comfort. Or they are just huge conformists who are usually too lazy to learn about something and form an opinion on it themselves.
They impart their wisdom to you with absolute certainty that they have chosen the right set of beliefs to apply to your circumstances, and if you just follow their beliefs properly you will get well. For the most part, they repeat what they learned 10, 20, 50 years ago, although they do occasionally take on the latest fad. Doctors adopt Ozempic with gusto, entirely ignoring the massive list of side effects including death. Natural practitioners adopt fasting, or cold water dipping, or whatever the latest sado-massochistic fad is. All beliefs based on some other person’s authority.
So where is “the science”?
What very few health practitioners ever do is go back to the primary sources, back to the research papers where various medical approaches are discussed and tested. They are happy to simply repeat what they have learned in college and rely on drug companies and health product vendors to keep them “up to date”.
But, to be fair, it is possible to find the very occasional rare type of health professional who does bother to check out, and where appropriate, work with the latest science. Our challenge is to find those rare specimens and then to be able to afford them. Living in rural Australia on a pension does not augur well for success in this quest, so in the event we fail to get the personalised help we need, our challenge is to do our own research and become our own specialists. We have no choice.
Finding “the latest science”
Finding the latest health science without expert guidance is a challenge that will defeat all but the most obsessive.
All my life I have self-medicated so the idea of doing so is not new to me. But even for me, it has recently become a serious challenge, as either I get it right or I die. Since 2022 I have been chasing my own savage health decline, with:
no help from the allopathic doctors I am able to afford, who have no idea what is wrong with me, let alone how to put it right, and
no help from various alternative practitioners because they are just too damned expensive, even if they did know anything.
Since 2022, I have been chasing individual health issues like Type 2 diabetes, shingles and two different cancers, getting what medical help I can and supporting it with self-medication. I have done the same as the doctors, in that I have treated each ailment as an individual disease, in the hope that I can contain it before it kills me, while I investigate why I have had so many potentially deadly health issues arising simultaneously after a crisis health event.
And all the time I have an underlying conviction that everything that is wrong with me is a downstream symptom of some common cause, so I just have to find out what that common cause is, and then find out how to fix it.
Using AI to find and interpret “the latest science”
I will freely admit at this point that I could have made very little progress in this quest without the assistance of AI. Any doctor or any other kind of healthcare practitioner who is NOT now using AI, is, in my opinion, dangerously negligent. But it does take skill to use it.
The trick with AI is to ask clever questions. The answers you get will only be as clever as the questions you ask, and believe me, it takes time to learn how to really push for the information you want. If you did this to a human, they would hit you, but AI has no ego, so you can push as hard as you like, as often as you like, and spend as long as you want in your quest for information you can understand and use, without fear of reprisal.
This was one question I submitted to ChatGPT about forms of medicine that do rely on the latest science. I had stumbled over the first two myself, but how long would it have taken me to discover the rest on the list? Almost impossible to do so, I would guess.
Me: There are some forms of medicine that are based on the very latest science, such as sports medicine and longevity medicine. Is there an understanding that these belong in a family of healthcare types, and what other forms of medicine might be included.
ChatGPT: There is an emerging family of healthcare approaches that integrate the latest scientific advancements, and they often overlap in their focus on optimization, prevention, and individualized care. These fields are sometimes grouped under "lifestyle" or "preventive" medicine but also extend into "functional" and "personalized" medicine due to their cutting-edge nature.
Here are a few notable forms of medicine that fit into this family:
Sports Medicine: Focuses on physical health, injury prevention, and performance enhancement for athletes and active individuals. It integrates the latest science on muscle physiology, biomechanics, and nutrition to optimize physical performance and recovery.
Longevity Medicine (Anti-Aging Medicine): Aims to extend healthspan (the portion of life spent in good health) and prevent age-related diseases. It often includes interventions based on the latest research in molecular biology, genetics, and epigenetics to slow or reverse biological aging.
Regenerative Medicine: Focuses on using the body's natural ability to heal itself, often incorporating stem cell therapies, tissue engineering, and other advanced biotechnologies to repair or replace damaged tissues.
Functional Medicine: A systems-based approach that looks at root causes of disease, often integrating genetic, environmental, and lifestyle factors. It emphasizes individualized treatment plans based on the latest research in genomics, microbiome science, and systems biology.
Personalized Medicine (Precision Medicine): Tailors treatments based on the individual’s genetic profile, environment, and lifestyle. This includes using genetic testing and biomarkers to guide treatment in areas like oncology, pharmacology, and chronic disease management.
Nutritional Medicine: Focuses on the role of diet and nutritional supplementation in disease prevention and treatment, with an emphasis on how different nutrients affect cellular function, especially related to mitochondria and metabolic pathways. This area is evolving quickly with new insights from molecular biology.
Integrative Medicine: Combines conventional medicine with alternative therapies like acupuncture, meditation, and herbal supplements, often focusing on the whole person (mind, body, and spirit). The latest evidence is incorporated to guide the integration of these therapies.
Environmental Medicine: Deals with how environmental exposures (like chemicals, toxins, and pollutants) affect health. This field is closely tied to advancements in toxicology, genomics, and public health.
I have not edited this material down, because I think we all need to see how different these approaches are to the deceptive bill of goods we are being sold at the moment by the legally registered healing modalities that we can find and access on the main street. Those listed above are based on the absolutely latest cutting edge research, not folklore, historical belief patterns and drug company profiteering.
How I stumbled over these forms of medicine
As I went on my personal journey to save my own life, I randomly stumbled over the following ideas:
neuro endocrine health. I found that the sports medicine people are into the science of our hormones and our neuro-transmitters in a big way. I knew my stress hormones had gone mad, and my insomnia had become deadly, and found that sports medicine in the human form of Andrew Huberman had many answers that other health approaches did not.
mitchondrial and cellular level health. I found that the longevity medicine people are into the science of mitchondrial and cellular health in a big way. I started to ask the myself what common denominator could there be between everything that was wrong with me, and obviously the lowest common denominator was cells and their mitochondria. As I started to research this I found that a lot of longevity medicine was about mitochondrial health and also about genomics, which then led me onto my next discovery.
genomics. I found that this is about how our “genetics”, and “epigenetics” set us up to respond to health challenges and dietary challenges in specific ways. While researching longevity products I discovered I carry the MTHFR gene and the implications of that for health, long term, are huge. Any doctor or practitioner who does not do some basic genetic testing is grossly negligent because they will NEVER find out what is wrong with many of us, particularly those with syndromes or degenerative diseases, without understanding our genes.
I have been getting lots of information from lots of sources, and am currently overwhelmed with both the information and the implications of the information. It is going to take me a while to process, but thanks to ChatGPT I might have at least been able to trace the cause of my lifetime of Fibromyalgia. If I am right, it is genetic, based on at least two related gene variations but maybe more, which means it was always going to require intelligent management for my lifetime. But when medicine gaslights you and tells you it is all in your head, there is no intelligent management to be had!
It would have been oh so nice to have had my approach to FMS taken seriously and refined with the latest scientific knowledge, rather than sniffed and snorted at and roundly and routinely and rudely dismissed.
A new approach to medicine
Modern science effectively allows us to throw away ALL existing forms of medicine and replace them with:
different systems of diagnostics,
that lead to identifying different sources for disease, and
result in different treatments for those diseases based on their newly identified source.
If a gene means that a person’s body is poor at processing a certain B vitamin, then you either have to eat more of that vitamin, or supplement with that vitamin, or do something to change the way the body is able to process that vitamin. You cannot simply ignore it. But we do.
So how might individuals forge ahead with a new approach to medicine?
I am premising this on the fact that there are few medical experts who understand science based medicine, and few of us can afford the ones who are out there. We have to rely on what they publish and what ChatGPT or similar AIs can make of what they have published. Whatever else may or may not be the case, we know that ChatGPT will help us more than any doctor ever has in the past, and is the best option we have for the future if we are not rich enough to afford the few experts out there.
But in dealing with AI, we have to take responsibility for asking the right questions and, as already stated, that is harder than it seems.
Putting it all together
This is very early days for me, but it has me very excited. I don’t yet know how to put this all together, the neuro-endocrine system, the cellular system and the genetics, (and also parasitology), but I am seriously optimistic that I might at least solve (not cure if it is genetic) the symptoms of FMS. Here is a process that might be worth trying.
Step 1, define the health problem you are trying to solve
I had experienced slowly but steadily worsening Fibromyalgia since I was 13. I had about 10 years off when I was smoking a lot of dope and had no FMS symptoms. Once I gave up smoking I was close to disabled until I discovered the supplement Lecithin with high levels of phosphatidylcholine. It didn’t cure my FMS but reduced my symptoms to the level where I could function close to normally. But after my hospitalisation with “covid’ in 2022, I lost control of the FMS almost completely, with the Lecithin only making minimal improvement in the symptoms.
Step 2, identify something that has in some way reduced or controlled symptoms
Phosphatidyl choline reduces MY fibromyalgia symptoms. I have told any number of doctors and alternative practitioners this, and they have, every last one of them, simply told me it cannot work. If I told anyone today that it works, I would get the same answer, because ALL the existing practitioners are basing their view of the world on beliefs, not science. But the science is now there to explain exactly how it works, if we have a mind to find out.
Step 3, ask Chat GPT or similar AI to find the links between the ailment you are dealing with and the somewhat successful intervention
This is where AI comes into its own. AI has no ego. And it has access to the entire internet of information that no human could scour in the few seconds it takes AI. Within seconds it can find the most recent and highest level of knowledge on any subject. I compose questions over and over again, until I get the wording just right, to get useful results. This can be a surprisingly frightening process - or at least, I feel fear when I do it, so don’t be put off if you need to mess around with it for a bit. You are allowed to bully AI and you are allowed to stick to it until you get the help you want. AI can’t fob you off (although it will try at times).
In this case I was specifically asking about genetics.
Me: High Phosphatidylcholine choline lecithin is the only supplement of any kind that has improved, but not removed, the symptoms of fibromyalgia. I am trying to see if there might be a genetic requirement for large and regular dosages of Phosphatidylcholine to make up for some shortfall in my ability to either manufacture it or use it as necessary. Are you able to make any such linkage?
ChatGPT: There is indeed evidence that genetic variations can affect how phosphatidylcholine (PC), choline, and related metabolites are synthesized and utilized in the body, potentially leading to a requirement for higher amounts of these compounds to alleviate deficiencies or functional shortfalls.
Here are key insights into genetic factors that may affect your phosphatidylcholine metabolism and their relevance to conditions like fibromyalgia:
ChatGPT went on to list the following gene variants and explain how each of them might impact on choline and FMS.
Choline Metabolism and PEMT Gene Variations
MTHFR Gene and Folate-Choline Pathway
CHKA/CHKB Genes and Choline Kinase
FMO3 Gene and Gut Metabolism of Choline
Step 4, start by researching the genetics
I am not sure genetics is the starting point for research into the source of all illnesses, but at this point, I am suspecting it might be. Even if it is not the starting point, I am guessing it is at least essential in some way, if we want to understand why we are sick.
I personally don’t understand enough about genetics yet, to make much of what ChatGPT is telling me in the various answers to questions I have asked. But I have worked out that I have two variations on the MTHFR gene, (compound heterozygous for C677T and A1298C) which means I have only around 40–60% of normal enzyme activity related to the MTHFR gene. I am short of the enzyme that processes a particular B vitamin. At the very least, that explains why lecithin supplementation has reduced my symptoms but not cured the FMS. I have not yet reviewed the other genes listed above. Once I understand each of them I hope I will know whether I have to supplement for one or more of them. I know that I need to support the shortfall brought about by my particular variation on the MTHFR gene, but as yet, do not know what is involved in the rest.
I suspect this really might be the point for paid support. This might take the form of having a DNA test done if you have not already and getting:
either a formal report done on your genetics which might turn up more than you could ever guess.
or support from professionals specialising in genetics.
If you do not already have a DNA test report, these services will organise for you to get a test done that they will work from.
I found this clinic in Australia that looks good, but is very expensive and not answering their phones. They think the MTHFR gene is so important that they can base an entire medical practice on it.
And I found this service that will take your DNA report and turn it into health information.
This is a nice little explanation of the importance of genes, particularly the MTHFR gene.
Step 5, devise a supplementation protocol designed to make up for the shortfall that has been defined by genetics
If you are lucky and can find and afford the right level of medical support, you will be given a supplementation protocol to follow to make up for your genetic variations, but if not, you will have to devise your own.
I actually started at the end of this process and worked my way back. I was researching mitochondrial health when I stumbled over the idea that longevity supplements contain many ingredients targeting the mitochondria. I came across the longevity supplement, AgeMate, and in researching it, discovered that they had a high emphasis on methylation. It turns out some people have one or more genetic variants that lead to reduced methylation capacity, and this in turn can lead to nutritional shortfalls and potential health complaints.
I bought my first pack of AgeMate in what was really just blind hope, but information from their support group led me on to exploring genetics.
Years back I got a report from Ancestry DNA to attempt to find lost family, but it also turns out that we can download that report and use it to detect these genetic predispositions or variants. So that is what I did, and identified that I am “heterozygous for both the MTHFR C677T and A1298C mutations, which means I carry one copy of each of these polymorphisms. This specific genetic combination is often referred to as being compound heterozygous for the MTHFR gene mutations.”
What this means in simple English is that I have trouble processing certain nutriments that are significantly related to FMS. Good to know.
It is too early yet to know what impacts supplementing with AgeMate or other supplements focussing on methylation, will have on my overall health, but it is a good start.
I have even gone so far as asking ChatGPT for a list of supplements to take for the problem with the MTHFR gene. I do not recommend this, because I have known ChatGPT to get it wrong, and I am certainly asking the question prematurely. Even for me, this is risky and is certainly not for anyone else with a different genetic makeup. It followed a long conversation on the MTHFR gene, and ChatGPT does seem to build up personal knowledge on the person asking the questions. I have included the recommendations here to let others see how we might learn to interrogate ChatGPT.
Me: Long shot question. With the information given so far, that at one time smoking tobacco and marijuana and at a different time taking lecithin with high phosphatidyl choline relived FMS symptoms, the former entirely and the latter partially, and that since covid 19, the lecithin is no longer working as effectively, are you able to recommend supplementation that might produce the removal of FMS symptoms, maybe related to methylation?
ChatGPT: [a long explanation of each supplement, followed by this summary.]
Summary of a Potential Supplement Protocol:
Methylfolate (5-MTHF): 400 mcg to 1 mg/day.
Methylcobalamin (B12): 1,000 mcg/day.
Pyridoxal-5-Phosphate (P5P): 25-50 mg/day.
Trimethylglycine (TMG): 500-1,000 mg/day.
N-Acetylcysteine (NAC): 600-1,200 mg/day.
Magnesium Glycinate/Malate: 200-400 mg/day.
Acetyl-L-Carnitine: 500-1,000 mg/day.
Phosphatidylserine: 100-300 mg/day.
CoQ10 (Ubiquinol): 100-200 mg/day.
Omega-3 Fatty Acids (EPA/DHA): 1,000-2,000 mg/day.
CBD Oil: Start with 10-20 mg/day.
Curcumin: 500-1,000 mg/day.
I know all of these supplements and am already taking most of them. But some of the doses seem a little high. More research needed.
Ongoing research
I now have to do a lot of ongoing research on other aspects of my genetics, to see how any of it may define cellular and systemic weaknesses that have to be specifically addressed, but stumbling over this first one, the MTHFR gene, has been a gift.
And how might our genetics have influenced our response to “covid”?
Implications in relation to covid
This is only relevant if you think that there might be some truth in the analyses that focus on the spike protein, implying that there is something real about the disease called covid. I asked a question as an aside to see if the idea is worth following up, but currently it is not my priority. It’s just something for the “in-tray” to be dealt with at a later stage.
Me: There has been some speculation that different genetic groups may have responded differently to covid 19 or the vaccination, specifically related to the ACE2 receptor. The suggestion has been that different genetic types have different levels of either ACE2 or the receptors for ACE2, and so are impacted differently by the ACE2 spike protein. Can you find any information on this.
ChatGPT: Yes, there is evidence that genetic variations in the ACE2 receptor and related genes may influence how different individuals or populations respond to COVID-19 infection and vaccination.
I couldn’t make much of the responses from here, but suffice it to say that variations in our genetics may well cause different responses to health threats such as those experienced over the last 4 years. I also have genetic variations involved in compromised ACE2 response.
Who wants to talk about any of this?
I would love to form a brainstorming group where we throw around the options for healing and allow ourselves to consider novel solutions. Please feel free to message me on chat if you would like to be part of an open-minded brainstorming investigation of just what simple and cheap ways there are to protect ourselves from all this toxicity and repair the damage it has caused.
Can you help?
I intend to keep writing of my journey through this rather strange time in my life, and for this planet. As soon as I know, I will share with you, what does and does not work to exorcise this bio-weapon from our bodies and take back some level of control of our lives.
If you think my writings are worthwhile, you can help me get more subscriptions and donations by sharing this article on other social media platforms, and by re-stacking this article in Substack Notes.
Or make a PayPal donation here to help with ongoing medical costs. Every little bit helps. The last donations, thank you, paid for a red light to help me find restful sleep and experimental nitric oxide gummies to see if increasing nitric oxide levels improves my overall health (it does). I now have a non-intrusive blood glucose monitor on the way.
Funny how doctors blame genetics for just about everything, (as an excuse for not curing anything) and yet, they never do any genetic testing and know next to nothing about our genes.
None of them want to admit that the number one CAUSE of all deadly and disabling diseases we're suffering from are the vaccines they demand we be injected with. If you're entirely UNVACCINATED, your risk of ANY serious health condition (heart disease, cancer, diabetes, arthritis, etc.) is less than 0.1%. Compare that to a well over 50% risk if you've ever been exposed to ANY vaccines.
Look up Dr Lynch mthfr .... he is probably the most recent pioneer in this area... and later decided there was a lot more to it as it all depends on if those genes are turned on or not. Epigenetics. But he's done a lot of research these past 20 yrs.